The other day I picked Ads up from school. It was a beautiful sunny day, and a few of us moms were outside chatting when Adyson says, "mom, can we please go, my eyes are so sensitive." Sure enough, when I look up her eyes are watering. Moments like this remind me that there is something special and different about her.
Trust me, it's easy to forget.
We are used to sunscreen. We are used to sunglasses. We are used to being inside during the hottest and brightest time of day. (Not to mention, I think she is just sooo beautiful!) (And that hair!)
She is a normal 4 year old. Constantly playing, getting her way, making us laugh, and doing it with SPUNK! So every now and again I am remind that for her, she doesn't have the luxury to forget. Her beautiful blues are always sensitive to light, even some crayon colors make them water. Those eyes don't get to rest, they are constantly moving due to her nystagmus. I imagine that her eyes are tired.
So today a story in Elder Anderson's talk just spoke to me. He spoke of a little 4 year old girl, Hadley, who was born with a hearing impairment. Her parents had come to terms with her disability and had worked very hard to teach her to talk. One day while in a grocery store, she saw a boy in a wheelchair with no legs. And she asked her mom quite loudly (she could not gauge volume with her disability), why he had no legs. The mother replied that God makes each of his children different. That little girl decided to talk to the boy. She told him that him having no legs made him special, just like her not being able to hear makes her special. And that when Jesus comes again he will be able to walk, and she will be able to hear. (What a smart little 4 year old!)
I guess I never realized how much this applies to Adyson. How amazing that one day her eyes will be still. They will not water and hurt. They will be clear. She will have pigment. (Is it wrong of me to hope that she will still have her honey blond locks?)
What an amazing thought. What a lovely talk. I am going to soak up conference this year. I hope you all do to!
For those of you wondering what the heck conference is go here.
For those of you wondering about my religion go here.
And if you want to know more about Ady and her albinism go here and here.
Trust me, it's easy to forget.
We are used to sunscreen. We are used to sunglasses. We are used to being inside during the hottest and brightest time of day. (Not to mention, I think she is just sooo beautiful!) (And that hair!)
She is a normal 4 year old. Constantly playing, getting her way, making us laugh, and doing it with SPUNK! So every now and again I am remind that for her, she doesn't have the luxury to forget. Her beautiful blues are always sensitive to light, even some crayon colors make them water. Those eyes don't get to rest, they are constantly moving due to her nystagmus. I imagine that her eyes are tired.
So today a story in Elder Anderson's talk just spoke to me. He spoke of a little 4 year old girl, Hadley, who was born with a hearing impairment. Her parents had come to terms with her disability and had worked very hard to teach her to talk. One day while in a grocery store, she saw a boy in a wheelchair with no legs. And she asked her mom quite loudly (she could not gauge volume with her disability), why he had no legs. The mother replied that God makes each of his children different. That little girl decided to talk to the boy. She told him that him having no legs made him special, just like her not being able to hear makes her special. And that when Jesus comes again he will be able to walk, and she will be able to hear. (What a smart little 4 year old!)
I guess I never realized how much this applies to Adyson. How amazing that one day her eyes will be still. They will not water and hurt. They will be clear. She will have pigment. (Is it wrong of me to hope that she will still have her honey blond locks?)
What an amazing thought. What a lovely talk. I am going to soak up conference this year. I hope you all do to!
For those of you wondering what the heck conference is go here.
For those of you wondering about my religion go here.
And if you want to know more about Ady and her albinism go here and here.
13 comments:
That was a sweet story. I didn't know your daughter was sensitive ti light. Thanks for sharing those special thoughts with me.
What a beautiful post! Thank you! Give her a big hug from me. Oh, and thanks for Etsy!
This one made me cry through and through! I really do love your posts. And I just love sweet Ady, she is so beautiful and perfect! I cant wait for the Ensign to come out, I had to work all day Sat. so I missed all of conference on Sat. I tried to to read it on the internet and my kids just would not let me do it, SO I am excited to read it in the Ensign at night when they are sleepin! Truly a beautiful post and SO true! We are so lucky to have the gospel in our lives!
Addison is such a sweetheart. And so BEAUTIFUL! It is easy to forget her gorgeous little porcelain face comes at a cost. I hope that a perfected state will never take that away. That is such a sweet story.
I loved that talk! Isn't it cool when there is one that just hits home and speaks right to you? I love it. It's definately my favorite weekend! Adyson is so beautiful and perfect!
Ady is a special girl, and obviously you are a special mom to have been chosen to be the mother and wife to your family that needs a positive, spunky, thoughtful, fun loving, up-beat caregiver. You are awesome. And the crappy cancer blog is a good idea, you are helping a lot of people without even knowing it!
What a beautiful blessing she is! And Heavenly Father couldn't have picked her a better mom. I hope Hallie grows up to be as sweet as your girls, and I hope someday I can be a mom like you!
I love how conference is so uplifting. I couldn't imagine Ady without her blonde hair so I can't imagine that it would be taken from her just to give her some pigment. It is apart of her and we all love it!
Wow, I didn't know that about Ady. I just thought she had the beautiful skin and blonde hair from you. No one would ever know! I noticed her eyes in Sunbeams, but never thought anything of it. She is a brilliant girl! Brad and I LOVE having her in our class! She is such a doll.
Ady looks perfect to me!!
You are an amazing person, Hayley! I seriously look up to you so much. We should really get together sometime. I would love to see you!
Both of your girls are adorable! Hayley you amaze me with the strength you have to go through the struggles your family has had. I read Ady's story and had no idea so don't worry about the teasing. What you should worry about is the boys come a few years when they come knocking at your door to take her on a date!
I agree with Jenny! I remember how boys were all over you starting in elemtary, so watch out! Ady is one of the most adorable little girls I have ever seen, I also would not be able to tell that anything was wrong, and didn't until I read your older post, which was very interesting read. You are so good at writing everything down!
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